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AHCFE Ukraine Statement

AHCFE Ukraine Statement Alternating Hemiplegia of Childhood Federation of Europe (AHCFE) is deeply saddened by the conflict in Ukraine. Our thoughts are with all people of Ukraine, and we hope for a swift and peaceful end to this terrible situation. We have been contacted by many AHC European groups concerned about any AHC families in […]

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United Kingdom Videos

Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)

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AHC Research

New gene therapy gives hope

Adeno-Associated Virus-Mediated Gene Therapy in the Mashlool, Atp1a3Mashl/+, Mouse Model of Alternating Hemiplegia of Childhood Arsen S. Hunanyan, Boris Kantor, Ram S. Puranam, Courtney Elliott, Angela McCall, Justin Dhindsa, Promila Pagadala, Keri Wallace, Jordan Poe, Talha Gunduz, Aravind Asokan, Dwight D. Koeberl, Mai K. ElMallah, and Mohamad A. Mikati Abstract Alternating Hemiplegia of Childhood (AHC) is a devastating autosomal dominant disorder caused by ATP1A3 mutations, resulting in severe hemiplegia and dystonia […]

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AHC Research

AAV Project update

March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel. We have the captain and crew, but before we start the countdown we need to make sure our rocket […]

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Blog Bulgaria

AHC Bulgaria joins AHCFE

A warm welcome to Alternating Hemiplegia of Childhood Bulgaria as AHCFE’s newest member. 3 Bulgarian children have been diagnosed with AHC to date and AHC Bulgaria was formed today We are looking forward to work with Bulgaria in the quest for a CURE AHC Bulgaria website will open soon http://www.ahcbg.org

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AHC Research

Symposium on AHC in Barcelona

AESHA (the Spanish AHC association) is hosting a Symposium on AHC in Barcelona on February 9th 2019. The program is very interesting and registration is free  

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AHC Research

ATP1A3 Symposium in Disease in Iceland 2019

The 8th symposium on ATP1A3 will be held in Reykjavik, Iceland October 3-4th 2019. President of Iceland will open the symposium and Kari Stefansson CEO of DeCode will present. It will be a symposium worth joining and we will have research result from many fantastic researchers. http://conferences.au.dk/atp1a3symposium2019/

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Blog

AHC in 2017 – Looking back….

The year started with a bang because on International AHC day 18th of January 2017 we will launch a new website dedicated to the documentary Human Timebombs The full film was made available in 10 languages on the site http://www.humantimebombs.com It is our hope that by making Human Timebombs public the film will help families all […]

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AHC Research

AHCFE is a member of Eurordis

AHC Federation of Europe is a member of Eurordis and volunteers as experts in two groups within Eurordis: Drug Information, Transparency and Access task force (DITA) The Drug Information, Transparency and Access (DITA) Task Force closely follows the work done by patients and consumers at the European Medicines Agency (EMA) and in the European Network […]

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Why neuroscience is critical

Neuroscience is absolutely critical. Alternating Hemiplegia of Childhood Video entry for the 2017 Neuro Film Festival http://www.neurofilmfestival.com. Learn more about the Neuro Film Festival Facebook: http://bit.ly/2iIgdcj