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AHCFE Ukraine Statement

AHCFE Ukraine Statement Alternating Hemiplegia of Childhood Federation of Europe (AHCFE) is deeply saddened by the conflict in Ukraine. Our thoughts are with all people of Ukraine, and we hope for a swift and peaceful end to this terrible situation. We have been contacted by many AHC European groups concerned about any AHC families in […]

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United Kingdom Videos

Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)

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AHC Research

New gene therapy gives hope

Adeno-Associated Virus-Mediated Gene Therapy in the Mashlool, Atp1a3Mashl/+, Mouse Model of Alternating Hemiplegia of Childhood Arsen S. Hunanyan, Boris Kantor, Ram S. Puranam, Courtney Elliott, Angela McCall, Justin Dhindsa, Promila Pagadala, Keri Wallace, Jordan Poe, Talha Gunduz, Aravind Asokan, Dwight D. Koeberl, Mai K. ElMallah, and Mohamad A. Mikati Abstract Alternating Hemiplegia of Childhood (AHC) is a devastating autosomal dominant disorder caused by ATP1A3 mutations, resulting in severe hemiplegia and dystonia […]

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AHC Research Iceland

The 8th Annual Symposium on ATP1A3 in Disease

The 8th Annual Symposium on ATP1A3 in Disease 2019 will take place 3 – 4 October 2019 at the beautiful and conveniently located Grand Hotel Reykjavík on Iceland. The host this year is the AHC Association of Iceland supported by an organising committee that consist of European scientists that have been working on ATP1A3 related […]

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AHC Research

AAV Project update

March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel. We have the captain and crew, but before we start the countdown we need to make sure our rocket […]

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Blog Bulgaria

AHC Bulgaria joins AHCFE

A warm welcome to Alternating Hemiplegia of Childhood Bulgaria as AHCFE’s newest member. 3 Bulgarian children have been diagnosed with AHC to date and AHC Bulgaria was formed today We are looking forward to work with Bulgaria in the quest for a CURE AHC Bulgaria website will open soon http://www.ahcbg.org

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AHC Research

Symposium on AHC in Barcelona

AESHA (the Spanish AHC association) is hosting a Symposium on AHC in Barcelona on February 9th 2019. The program is very interesting and registration is free  

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Blog

AHC in 2017 – Looking back….

The year started with a bang because on International AHC day 18th of January 2017 we will launch a new website dedicated to the documentary Human Timebombs The full film was made available in 10 languages on the site http://www.humantimebombs.com It is our hope that by making Human Timebombs public the film will help families all […]

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Uncategorized

Why neuroscience is critical

Neuroscience is absolutely critical. Alternating Hemiplegia of Childhood Video entry for the 2017 Neuro Film Festival http://www.neurofilmfestival.com. Learn more about the Neuro Film Festival Facebook: http://bit.ly/2iIgdcj

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Uncategorized

Four AHC associations fund international AHC patient registry

AHC Associations from the Nederland’s, UK,  Iceland and the international organisation Cure AHC have joined forces to fund the IAHCRC-CLOUD platform which will be operated by the International AHC Research Consortium in collaboration with patient driven AHC associations. This project is headed by Rosaria Vavassori who is the IAHCRC Data Manager and will be crucial […]