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United Kingdom Videos

Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)

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AHC Research Iceland

The 8th Annual Symposium on ATP1A3 in Disease

The 8th Annual Symposium on ATP1A3 in Disease 2019 will take place 3 – 4 October 2019 at the beautiful and conveniently located Grand Hotel Reykjavík on Iceland. The host this year is the AHC Association of Iceland supported by an organising committee that consist of European scientists that have been working on ATP1A3 related […]

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AHC Research

AAV Project update

March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel. We have the captain and crew, but before we start the countdown we need to make sure our rocket […]

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AHC Research

ATP1A3 Symposium in Disease in Iceland 2019

The 8th symposium on ATP1A3 will be held in Reykjavik, Iceland October 3-4th 2019. President of Iceland will open the symposium and Kari Stefansson CEO of DeCode will present. It will be a symposium worth joining and we will have research result from many fantastic researchers. http://conferences.au.dk/atp1a3symposium2019/

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Blog

AHC in 2017 – Looking back….

The year started with a bang because on International AHC day 18th of January 2017 we will launch a new website dedicated to the documentary Human Timebombs The full film was made available in 10 languages on the site http://www.humantimebombs.com It is our hope that by making Human Timebombs public the film will help families all […]

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AHC Research

AHCFE is a member of Eurordis

AHC Federation of Europe is a member of Eurordis and volunteers as experts in two groups within Eurordis: Drug Information, Transparency and Access task force (DITA) The Drug Information, Transparency and Access (DITA) Task Force closely follows the work done by patients and consumers at the European Medicines Agency (EMA) and in the European Network […]

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Uncategorized

Four AHC associations fund international AHC patient registry

AHC Associations from the Nederland’s, UK,  Iceland and the international organisation Cure AHC have joined forces to fund the IAHCRC-CLOUD platform which will be operated by the International AHC Research Consortium in collaboration with patient driven AHC associations. This project is headed by Rosaria Vavassori who is the IAHCRC Data Manager and will be crucial […]

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Blog Videos

Human Timebombs – Shortfilm