Skip to the content
AHC Federation of EuropeAHC Federation of Europe
  • Home
  • ABOUT AHCFE
    • AHCFE Mission Statement
    • Our Executive Board
    • AHCFE Members
      • Bulgaria
      • Denmark
      • France
      • Germany
      • Iceland
      • Ireland
      • Italy
      • Poland
      • Spain
      • The Netherlands
      • United Kingdom
    • What is AHC?
    • AHC Research
  • Resources
    • BLOG
    • Videos
    • Privacy Policy
    • LINKS
  • CONTACT
  • Home
  • ABOUT AHCFE
    • AHCFE Mission Statement
    • Our Executive Board
    • AHCFE Members
      • Bulgaria
      • Denmark
      • France
      • Germany
      • Iceland
      • Ireland
      • Italy
      • Poland
      • Spain
      • The Netherlands
      • United Kingdom
    • What is AHC?
    • AHC Research
  • Resources
    • BLOG
    • Videos
    • Privacy Policy
    • LINKS
  • CONTACT

Nothing Found

  • Home
  • ABOUT AHCFE
  • Resources
  • CONTACT
Human Timebombs - Grand Prize Winner at Neuro Film Festival

Posts

  • AHCFE Ukraine Statement
  • Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)
  • AHCFE Annual Meeting 2021
  • New gene therapy gives hope
  • The 8th Annual Symposium on ATP1A3 in Disease

Archives


Instagram

Alternating Hemiplegia of Childhood Federation of Europe (AHCFE) is deeply saddened by the conflict in Ukraine. Our thoughts are with all people of Ukraine, and we hope for a swift and peaceful end to this terrible situation. "Being a mother and carer of a child with a rare disorder has turned my life upside-down and taken me down a rabbit hole of sacrifice, pain, uncertainty and loneliness. Caring has become my absolute priority and everything else has to fit in around this." 💟Bridget, mother to Ollie (Spain) and AHCFE Board member. "Being a mother of an AHC kid is the most beautifull and exhausting job. Indy makes me smile, laugh, cry and tired. She has taught me to live in the moment and to be flexible. She is my always-happy-sunshine; she colours my life." 💟 Nienke, mother to Indy (The Netherlands) and AHCFE Board member. This #IWD we join @ahcspain 's initiative to highlight the fact that the vast majority of caregivers are so-called informal carers, i.e. unpaid carers, and a large percentage of these informal carers are women. We are delighted to announce the re-activation of the AHC Federation of Europe (AHCFE). Rare is PROUD 💙 💚❤️💙 February 28th is Rare Disease Day 💚❤️💙 70% of genetic rare diseases start in childhood. 72% of rare diseases are genetic, including AHC. In approximately 80% of cases, AHC is caused by a mutation in the ATP1A3 gene.

AHCFE Memberships


Site managed and maintained by A Walk in the Park

Tweets by AHCFE_
Follow

Categories



AHCFE Newsletter Subscription

By clicking submit, you agree to share your email address with the site owner and Mailchimp to receive marketing, updates, and other emails from the site owner. Use the unsubscribe link in those emails to opt-out at any time. Thank you.

Processing…
Success! You're on the list.
Whoops! There was an error and we couldn't process your subscription. Please reload the page and try again.

© 2022 AHC Federation of Europe

Privacy Policy

Powered by WordPress

To the top ↑ Up ↑
We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “Accept”, you consent to the use of ALL the cookies.
Do not sell my personal information.
Cookie SettingsAccept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checkbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT