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Blog

AHC in 2017 – Looking back….

The year started with a bang because on International AHC day 18th of January 2017 we will launch a new website dedicated to the documentary Human Timebombs The full film was made available in 10 languages on the site http://www.humantimebombs.com It is our hope that by making Human Timebombs public the film will help families all […]

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AHC Research

AHCFE is a member of Eurordis

AHC Federation of Europe is a member of Eurordis and volunteers as experts in two groups within Eurordis: Drug Information, Transparency and Access task force (DITA) The Drug Information, Transparency and Access (DITA) Task Force closely follows the work done by patients and consumers at the European Medicines Agency (EMA) and in the European Network […]

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Why neuroscience is critical

Neuroscience is absolutely critical. Alternating Hemiplegia of Childhood Video entry for the 2017 Neuro Film Festival http://www.neurofilmfestival.com. Learn more about the Neuro Film Festival Facebook: http://bit.ly/2iIgdcj

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Four AHC associations fund international AHC patient registry

AHC Associations from the Nederland’s, UK,  Iceland and the international organisation Cure AHC have joined forces to fund the IAHCRC-CLOUD platform which will be operated by the International AHC Research Consortium in collaboration with patient driven AHC associations. This project is headed by Rosaria Vavassori who is the IAHCRC Data Manager and will be crucial […]

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Blog Videos

Human Timebombs – Shortfilm

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Human Timebombs – Documentary

To watch the full film please go to the official site where you can find it with subtitles in 10 languages: