12th Symposium on ATP1A3 in Disease (14 – 15 Nov 2024) Barcelona, Spain

12th Symposium on ATP1A3 in Disease

Welcome to the 12th Symposium on ATP1A3 in Disease, a scientific meeting that traces its roots back to the seminal discovery of the ATP1A3 mutations in Alternating Hemiplegia of Childhood (AHC).

The inaugural symposium in Brussels in 2012 marked the beginning of a profound scientific journey for the AHC and ATP1A3 community. It served as a pivotal moment where researchers, clinicians, patients, and advocates came together to embark on a collective quest to understand ATP1A3-related diseases. Since then, the symposium has become a beacon of collaboration, attracting diverse perspectives and expertise from around the world.

Join us on 14-15 November 2024, as we gather for the first time in Spain at the historic Espai Modernista Sant Pau in Barcelona. Against the backdrop of this vibrant city, we’ll continue to explore the complexities of ATP1A3, from gene mutations to potential treatments, in an atmosphere of collaboration and shared purpose.

From Rome to Tokyo, from Chicago to Barcelona, each meeting has added layers of insight and momentum to our collective efforts. As we prepare for this latest chapter, we look forward to welcoming you. Your involvement is crucial to our shared mission.

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Programme:

This will be a hybrid event discussing the progress in understanding the basic science, developments in translational science – from ongoing treatments, including gene-based and pharmacological and functional treatments, to clinical trials for mouse models and biomarkers – and what matters for families.

Here is a taster of the programme topics that will be covered during this two-day conference. The full programme schedule will be released in the coming weeks.

Barcelona ATP1A3 Symposium

 

To Register Click Here

More information can be found on the 12th Symposium on ATP1A3 in Disease website

14-15 November 2024, Barcelona. Spain 

Email: atp1a3.barcelona@aesha.org

AHCFE (Annual General Meeting) 3rd December 2024

Join our AHC Federation of Europe’s next Annual General Meeting (AGM).

Annual General Meeting Date:

3rd December 2024 (2100 – 2200 pm CET)

Link to the meeting –  (To be followed soon)

See you all.

Featured Image: Photo by Sincerely Media on Unsplash

 

AHC Song “One in a Million”

 

”One in a Million” AHC Song was written, sung and recorded by Elwin at the International AHC Symposium held in Edinburgh in October 2022.  Elwin is a board member of the Netherlands AHC Association and parent of AHC Champion Indy. This video is about his love for his daughter, and above all the insecurities and fears having and living with AHC entails.

Do leave a message or comment below and show your support

How to join Microsoft (MS) Teams for the AHCFE Annual General Meeting (AGM) 

How to join Microsoft (MS) Teams for the AHCFE Annual General Meeting (AGM) 

  1. Please use this link to join the Microsoft Teams meeting: https://tinyurl.com/4m96pcp5    
  2. Click on the link where it says ‘Click here to join the meeting’  
  3. You will then see this page below: 
  4. If you are already registered on Teams and have the application downloaded on your computer or smartphone if the Teams app doesn’t automatically start (it often will) then click ‘open your teams app’  
  5. If you haven’t used Teams before then we recommend you can select ‘continue on this browser’.  This will allow you to continue on this browser as a guest and you will not have to download the team’s app.   

The link will be live from 7.55 pm (Central European Time) on Saturday 5th November 2022 and the meeting starts at 8 pm CET.  

We look forward to seeing you on Saturday 5th November 2022 

AHC Federation of Europe Executive Committee   

AHCFE Ukraine Statement

AHCFE Ukraine Statement

Alternating Hemiplegia of Childhood Federation of Europe (AHCFE) is deeply saddened by the conflict in Ukraine.

Our thoughts are with all people of Ukraine, and we hope for a swift and peaceful end to this terrible situation.

We have been contacted by many AHC European groups concerned about any AHC families in Ukraine.  Through contacts, we have established there are two Ukrainian AHC families and we have been told they are currently safe.

We have offered to connect them with other AHC organisations and families in Europe should they need support.

© Clay Banks | Unsplash

Please leave a message or note of your support for the AHC Ukraine families. Thank you!